Epidermolysis Bullosa

In Memory of Alex & Nicky | Supporting EB Advocacy
"Sleeping Angel" honors my sons, Alex (stillborn at full term) and Nicky, who courageously lived with Recessive Dystrophic Epidermolysis Bullosa (EB) for 25 years.
My mission is to raise awareness for this painful disorder.

Note on your purchase: Proceeds are not a charitable donation, but directly support me—an EB mom who faced two bankruptcies caring for my son. Running my daily EB awareness projects takes hours every day; your purchase makes advocacy possible.
Thank you for helping me honor my boys and fight for a cure for EB!